a group of young carers in front and on top of castle ruinsAs a starting point, here are some sources of information about a range of conditions, and organisations that provide support for specific conditions. Make sure you also check out the links to other support organisations. Let us know if there are any that are of interest to you that are not represented here, so we can keep our information updated and relevant.

Most importantly, speak to us for more information and personal support – you might be struggling to understand exactly what illness or disability is affecting the person you are caring for, or you might not have a diagnosis or might be waiting for one. We can support you through this process.

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ADHD and ADD

Carers’ Trust: ADHD and ADD information page
ADDISS – The National Attention Deficit Disorder Information and Support Service
ADD Resources – information about ADHAD
Adders.org– information about both ADD and ADHD
Attention Deficit Disorder Association

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Alcohol, drugs and addiction

Carers’ Trust: alcohol, drugs and addiction information page
Royal College of Psychiatrists factsheet: alcohol, drugs and addiction
DAN24/7 – free helpline for anyone in Wales for information and help relating to drugs or alcohol
Kaleidoscope – aims to minimise harm to individuals and communities affected by substance misuse, enabling people to make informed choices and positive changes to their lives

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Alzheimer’s – see under Dementia

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Autistic Spectrum Disorders

Carer’s Trust: ASD information page
The National Autistic Society – charity for people with Autism, including Asperger’s Syndrome, and their families
ASD Friendly – community of parents and carers of people with Autism and Asperger’s Syndrome
Asperger’s Syndrome Foundation
United Response
Health Talk: Autism Discussion
Autism Spectrum Disorder – a website with information for parents and carers of people with an Autism Spectrum Disorder in Wales
Caring4OurKids – A Resource for Parents of Kids with ASD, CFS, or Fibromyalgia (US website)
National Autism Centre – Autism Resources for Families (US website)
Sesame Street Autism Resources for Parents (US website)
Article – Reduce the noise: Help loved ones with sensory overload enjoy shopping (US website)
Article – Creating a home where your child can thrive with a disability (US website)
Centre for Disease Control – Autism Links and Resources (US website)
Article – Estate planning for parents of children with autism (US website)
Operation Autism, a resource guide for military families (US website)
Article – Moving with Special Needs Kids: A guide for parents (US website)
Temple Grandin’s teaching tips for children and adults with autism (US website)

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Cancer

Macmillans – improves the lives of people affected by Cancer.
Macmillan Cancer Support: supporting a loved one with cancer
Macmillan Cancer Support: being a carer
Macmillan Cancer Support: a guide for young carers
Cancer Research UK: caring for the carer
Cancer Research UK: help at home for someone with cancer
Marie Curie Cancer Care: being there for someone with a terminal illness
Health Talk: Cancer Discussion

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Dementia

Carers’ Trust: dementia information page
Carers’ Trust: Carers Road Map – a guide for carers of people with dementia
Carers’ Trust: Legal Guide to Dealing with Dementia
Alzheimer’s Society: What is dementia? Information page
Alzheimer’s Society: Factsheets
Dementia UK: Understanding Dementia and Tips for Communication
Worcestershire Association of Carers: Living with Dementia Guide
Royal College of Psychiatrists Factsheet: Alzheimer’s disease and other dementias
Health Talk: Dementia discussion

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Down’s Syndrome

Carers’ Trust: Down’s Syndrome information page
The Down’s Syndrome Association
Down’s Syndrome Research Foundation
Down’s Heart Group – support and information about heart conditions associated with Down’s Syndrome

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Epilepsy

Epilepsy Wales – helps to improve the lives of those with epilepsy, their families and carers, through an information and advice helpline, raising public awareness and understanding and support groups

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HIV

Terrence Higgins Trust: supporting someone with HIV
NHS Choices: Living with HIV

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Learning Disabilities

Carers’ Trust: learning disabilities information page
Foundation for People with Learning Disabilities: guide for parents of children (of any age) with a learning disability
Royal College of Psychiatrists factsheet: learning disability and mental health
Cartrefi Cymru
 – supporting people with learning disabilities in their communities, in Wales
The Foundation for Challenging Behaviour – making a difference to the life of people with severe learning disabilities
Net Buddy! – information and tips website for parents and carers of people with learning disabilities. By Carers for Carers.

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ME and Chronic Fatigue

National ME Centre: what is ME?
ME Support: Care for someone with severe ME

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Mental health

Carers’ trust: young carers and mental health information page
Mind: How to Cope as a Carer
Rethink Mental Illness: Caring for Yourself
Royal College of Psychiatrists Checklist for Carers – if you care for someone with mental health problems, here is a checklist from the Royal College of Psychiatrists designed to help you get the information you need about the diagnosis and treatment of the person you care for.
Royal College of Psychiatrists factsheet: Anxiety and Phobias
Royal College of Psychiatrists factsheet: Depression
Royal College of Psychiatrists factsheet: Post-Natal Depression
Royal College of Psychiatrists factsheet: Eating Disorders
Royal College of Psychiatrists factsheet: Learning Disability and Mental Health
Royal College of Psychiatrists factsheet: Severe Mental Illness (psychosis)
Mind: What is Bipolar?
Royal College of Psychiatrists factsheet: Bipolar Disorder
Royal College of Psychiatrists factsheet: Schizophrenia
Royal College of Psychiatrists factsheet: Personality Disorder
Mind: Supporting Someone who feels Suicidal
Royal College of Psychiatrists factsheet: Self-Harm
Royal College of Psychiatrists factsheet: Antidepressants
Royal College of Psychiatrists factsheet: Antipsychotic Medication
Health Talk: mental health discussion
Mental Health Care – the website offers information for family members and friends of people who have psychosis

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Multiple Sclerosis

Multiple Sclerosis Society – research, respite care centres, grants, education and training. Helpline 0808 800 8000 
MS Society: what is MS
MS Society: support for carers and families
NHS Choices: Multiple Sclerosis
Health Talk: Multiple Sclerosis discussion

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Parkinson’s Disease

Parkinsons Society – help and advice for those with Parkinsons and their Carers
Parkinson’s UK: Caring for someone with Parkinson’s
Health Talk: Parkinson’s Disease discussion

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Sensory Loss

RNIB – supports blind and partially sighted people
Action for Hearing Loss (was RNID) – changing the world for deaf and hard of hearing people

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Stroke

Stroke Association – working for a world where there are fewer strokes and all those touched by stroke get the help they need

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